Considerations for LTCi

The Caregiving Trap: Solutions for Life's Unexpected Changes

Parental Relationships, Sibling Rivalry, and Fear of Asking for Help

by Pamela D. Wilson CSA, MS, BS/BA, CG

Pamela D. Wilson, MS, BS/BA, CG, CSA, Certified Senior Advisor specializes in working with family and professional caregivers to navigate healthcare and aging concerns. Wilson, an expert in the field of caregiving, has personally helped thousands of family and professional caregivers since 2000 in her career as an advocate, a care navigator, and an educator. Through her company, The Care Navigator, she is an advocate and service provider in the roles of guardian, power of attorney, care manager, and transition specialist. She was producer and host of The Caring Generation®, from 2009 to 2011, an educational radio program for caregivers on 630 KHOW-AM. In addition to her work at the Care Navigator, Pamela gives back to the community by serving as chairperson of the Community Ethics Committee in Denver, Colorado. Her new book, The Caregiving Trap: Solutions for Life’s Unexpected Changes, is available through all major bookstores as well as on .

The familiar saying “you can choose your friends but not your family” becomes a glaring reality when adult parents might benefit significantly from a little assistance.

The situation may not only be that adult children are concerned about the demands of caring for parents but that adult siblings simply may not get along and refuse to work together in providing assistance for parents.

How do families arrive at a point where parents and adult children prefer to avoid each other and simply say “I’m done?” Relationship challenges may date back to childhood dynamics that grew increasingly more difficult over time. One child may have been favored by parents and the other children in the family were jealous.

One child may have competed for the attention of parents by achieving good grades or excelling at sports while another child failed to possess these talents — and struggled to make good grades or was ridiculed by brothers, sisters, and other children for not being physically strong, fast, or coordinated.

Some families simply become ambivalent as adult children move away from parents and contact becomes less frequent. While many families remain in contact, other family members question the value of making an effort to gather when there is not an emotional connection to make the excursion enjoyable — the annual family gathering is dreaded and eventually avoided.

Reversing a prior path

After years of avoidance, it becomes difficult for adult children to reverse the prior path, to forgive, and to show up at a family event without being asked a thousand questions of where the child has been and why he or she has avoided family all these years. Rather than face this line of questioning, it is much easier to just stay away.

Add the complication of marriage and situations where a parent may not like a son- or daughter-in-law. This factor complicates many adult child-parent relationships. There are situations where the son or daughter will visit without their spouse because the interaction is too stressful.

Just the opposite are parental situations where adult children could be more helpful but may have criticized or become impatient with a parent when attempting to provide assistance. This negative experience results in the parent hesitating to ask again for assistance for fear of another negative interaction. The reality is that most, if not all parents, would benefit from simple support long before more advanced care is needed.

I know this because my parents would have benefited from greater assistance earlier in life. They did not ask. I made the assumption they were able to manage and later discovered, after my mother’s death, all of the tasks for which I could have provided assistance that would have made the daily lives of my parents so much easier. A recent visit with very dear older friends brought back memories of my parents and 20:20 vision of my experience with my parents.

This couple, while still very able, is beginning to slow down. They have an interest in the computer; a few minutes adding bookmarks to a search engine and providing instructions for how to use Facebook seemed like magic to them when this was a simple task for me. Identifying a local elder law attorney to update documents took a few minutes on the computer. The lives of my friends could be greatly simplified, yet they hesitate to ask their children for assistance.

Recognizing a ‘gap of need’

After visiting my friends, my internal angel wanted to pick up the phone and speak to their children about how they might help; the logical side of me agreed that a less direct and different tactic might be better. Since I was added as a “friend” to my friend’s Facebook page, I sent friend requests to their children who I have been in touch with over the years in the hopes that they might contact me and ask about my visit with their parents.

This gap of not wanting to be seen as needing help represents the conundrum many of us face in life. We fear asking for help or we feel like we are a burden to others if we would ask for assistance. Perception also enters into the equation; the perception of being able to manage daily life versus being seen as less able, less intelligent or as old and frail by adult children and others.

This marginalization of older adults is prevalent in our youthful society who continues to make all efforts to distance from older adults who might be seen as wrinkled, unhealthy, physically unable, or mentally slow. Heaven forbid we age, which we will all do whether we like the experience or not.

When will we slow down, take a deep breath and realize that a simple act of kindness — whether for a parent, a brother, a sister, a friend or an unknown acquaintance — can make all the difference in the world to a person who may be struggling?

We have assembled more detailed information about Caregiving and Caregiving From a Distance Family and Professional Caregivers on The Care